Thyroid UK continues to work productively with other organisations to promote and establish the best of care through meaningful dialogue with clinicians. In order to further its aims, the organisation currently has membership of or is involved in the work of the following organisations:
Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. They are an alliance of over 180 patient organisations.
Their aim is to ensure that high quality services, information and support are provided to all. They actively support research and innovation across the field of genetic medicine.
The James Lind Alliance is a non-profit making initiative, being developed under the direction of a broadly-based Strategy and Development Group. Its Secretariat is funded by the Medical Research Council and the Department of Health. The James Lind Alliance aims to identify the most important gaps in knowledge about the effects of treatments, and has been established to bring patients and clinicians together in 'Working Partnerships' to identify and prioritise the unanswered questions that they agree are most important. This information will help ensure that those who fund health research are aware of what matters to patients and clinicians. Thyroid UK keeps up to date with the Alliances projects and plans to work in partnership with them in the future.
National Voices was formed in 2008, National Voices is a coalition of more than 200 national health and social care organisations, coming together to ensure a stronger voice for all those who come into contact with the NHS and care services, and the voluntary organisations that help them. Their independence of Government, and wide representation, rooted in service user experiences, gives them the authority they need to influence decision makers.
Lyn Mynott attended the National Voices Conference, "No Decision About Me Without Me: Making It Real", where she took park in workshops entitled, "NHS Direct: The Information Revolution: What are people's information needs and how do we meet them?"; "How do we make a reality of shared decision making?" and then went on to discuss, "How to Share Information" and "What can National Voices Do?"
Thyroid UK passionately believes in shared decision making and choice and will continue to be involved in any discussions/workshops on this topic.
The Patients Association is an independent charity that highlights the concerns and needs of patients. They work with Government and a broad range of individuals and organisations to develop better, and more responsive, health services. The Patients Association advocates for greater and more equitable access to high-quality, accurate and independent information
for patients. Their aim is to reduce health inequalities by helping patients to be better informed and by campaigning for patients to have the right to be involved in decision-making.
The Network for Patients brings together patient groups with a common interest to share ideas and work together on issues affecting all the diverse groups of patients represented. Thyroid UK is a member of this group and has been involved in their campaign, "Joint Manifesto for Trust".
Last updated 20/04/2015