Patients Stories Needed for ME Website
Carol Smith, someone who was ill for many years before visiting Dr Peatfield, has set up a website where she explores the symptoms ME/CFS and Fibromyalgia and makes suggestions about testing (especially adrenal testing), treatments and books to read.
She is interested in collecting more stories for her "Patients' Stories" page. If you have been diagnosed with ME/CFS or Fibromyalgia and found testing or treatments really helped to get you better, Carol would love your story.
To read all about Carol and see what she has to say go to her website: http://aboutmy.me
One year since Dr Gordon Skinner’s last IOP
Gordon R B Skinner MD (Hons) DSc, FRCPath FRCOG
22 Alcester Road
Tel/Fax 0121 449 8895
23rd September 2014
On Tuesday 7th October 2014 it will be exactly one year since Dr Gordon Skinner’s last IOP at the General Medical Council, St James’ Buildings, 79 Oxford Street, Manchester, M1 6FQ. Sadly, one year on, nothing has changed for the patients who continue to be ill and their needs ignored by the medical establishment.
Perhaps the GMC is not the ultimate vehicle for change but they cannot forget that they owe an explanation to Dr Gordon Skinner’s patients - and more widely to this particular group of people who are clinically hypothyroid but biochemically euthyroid - as to why they continued to ignore thousands of letters which supported the success of Dr Skinner’s diagnosis and treatment.
I would like to urge you all to email and/or write to the people listed below at the GMC and the Department of Health to reach them on the 7th October 2014 to remind them that they have been very irresponsible in being influenced by the current dogma regarding the way that hypothyroidism is diagnosed and treated and that if they claim to protect patients and act in the patients’ best interest they must address this issue.
It would be a reminder to the GMC that they cannot renege on their duty by closing the doors and hoping we will all go away. They must take some responsibility for having brought these cases against Dr Skinner and acting under the influence of those who promote this current dogma even though such dogma has failed to take into account the individual needs of patients who are clinically hypothyroid but biochemically euthyroid. One has to ask, was the GMC manipulated by some members of the medical profession in this instance resulting in a failure to protect the interests of certain hypothyroid patients?
It is also very important that everyone who writes asks for acknowledgement of receipt of their letter.
Afshan Ahmad PhD
Names and addresses to write to:
Mr Peter Swain, Assistant Director of Investigation, General Medical Council, Medical Practitioners Tribunal Service, Seventh Floor, St James’s Buildings, 79 Oxford Street, Manchester, M1 6FQ
Professor Sir Peter Rubin, Chair of General Medical Council, Seventh Floor, St James’s Buildings, 79 Oxford Street, Manchester, M1 6FQ
Email: firstname.lastname@example.org. Email to be marked in subject box as: FAO: Professor Sir Peter Rubin, Chair of GMC.
His Honour David Pearl, Medical Practitioners Tribunal Service, General Medical Council, Seventh Floor, St James’s Buildings, 79 Oxford Street, Manchester, M1 6FQ
Professor Dame Sally Davies, Chief Medical Officer, Department of Health, Richmond House, 79 Whitehall, London, SW1A 2NS
The Editor of the Sunday Telegraph
**and copied to Dr Afshan Ahmad
Hypothyroid Survey - University of Bristol
Dr Nikki Coghill, Researcher, University of Bristol has asked for our help in looking at whether a piece of research is feasible. I think the results will be very interesting so please support her team by completing the survey.
Here is some information about the team and the research they want to do:
Fatigue in people who have an underactive thyroid
Who are we: We are a team of researchers who are interested in helping people who have an under active thyroid. We work at the University of Bristol, in The Centre for Academic Primary Care (CAPC). CAPCE is involved in sourcing funding, conducting research and publishing the results of this, in order to contribute towards helping patients receive better care and treatment on a day-to-day basis.
What are we interested in?: We are interested in the role of physical activity in addressing fatigue in people who have an underactive thyroid.
Why are we interested in this?: Fatigue and weight gain were the main complaints voiced by members of a local thyroid support group who have an underactive thyroid. So, it got us thinking about the role of physical activity in addressing at least the fatigue part. Physical activity has been shown to help with fatigue in people who have other conditions such as cancer, and rheumatoid arthritis (Schmitz et al, 2005, Rongen-van Dartel et al, 2014). However, it would be extremely valuable to know whether this is the case in people who have an underactive thyroid and if it is, how much and what type of physical activity would be most beneficial.
What do we need to do?: These days getting money to conduct research is not an easy business. It's never been easy but is certainly seems to have become harder since the recession! To support our case for attracting funding to investigate this we want to carry out a survey of fatigue and physical activity levels in people who have been diagnosed with an under active thyroid.
The survey is completed anonymously on-line and your time to complete them will be very much appreciated.
Please enter or click on the link below:
Schmitz KHO, Holtzman J, KS, Mâsse LC, Duval S, Kane R. (2005) Controlled Physical Activity Trials in Cancer Survivors: A Systematic Review and Meta-analysis. Cancer Epidemiol Biomarkers Prev. 14;1588.
Rongen-van Dartel SAA, Repping-Wuts H, van Hoogmoed D, Knopp H, Bleijenberg G, van Riel PLCM, Fransen J. (2014). Relationship Between Objectively Assessed Physical Activity and Fatigue in Patients With Rheumatoid Arthritis: Inverse Correlation of Activity and Fatigue. Arthritis Care & Research. 66, 852.
Thyroid Federation International - Statement
Thyroid hormone substitution: T4/T3 combination treatment and animal thyroid extracts
The standard treatment for hypothyroidism is levothyroxine (T4). In the majority of people with hypothyroidism levothyroxine reverses their symptoms. Levothyroxine has a long track record of safety and treatment can be monitored reliably by blood tests. Because of the long duration of action, levothyroxine can be taken once daily. Levothyroxine is a "pro-hormone" and is converted in the body to T3, the really active thyroid hormone, which tissues and cells respond to.
Thyroid Federation International is concerned that many people with thyroid disease feel that their symptoms are not well controlled. The information available in the media on this topic may be confusing for patients. It includes suggestions of using large doses of levothyroxine, T3, combinations of levothyroxine and T3 or desiccated pig thyroid.
Thyroid Federation International believes that patients should be empowered by being well informed about their condition and the various treatment options and should take an active part in decision making about their treatment. Patients must also be well informed about potential adverse effects of treatment options.
People who remain symptomatic on thyroid hormone replacement are an important and medically challenging group who deserve to be taken seriously and managed holistically. Within this group there are individuals with other medical diagnoses or who have never achieved optimal thyroid hormone replacement with levothyroxine; alternative means of thyroid hormone replacement may provide temporary subjective improvement in symptoms, at the expense of long-term harm to their health and may delay the diagnoses of other conditions. Many symptomatic patients who have tried different thyroid hormone replacements fail to improve, which is indicative of the fact that this approach is not a panacea for people who are in that unfortunate category. For some people a trial of combination of T4 and T3 may prove to be beneficial. Thyroid Federation International endorses the European Thyroid Association guidelines on this topic (www.karger.com/Article/Pdf/339444) which provides a sound, responsible, safe and holistic framework (see Appendix 1).
Some people choose to take high doses of thyroid hormones or desiccated pig thyroid. This choice should be respected - in such cases we believe that they should have access to medical supervision and monitoring for potential development of adverse effects.
We believe that engagement between patients, scientists, doctors, patient and medical professional organizations with an open mind is the best way of improving patient outcomes and their quality of life. Our knowledge and understanding of thyroid hormone replacement in people with hypothyroidism needs to be broadened. Thyroid Federation International believes that more research is required using robust scientific methodology.
May 25th, 2014
President of Thyroid Federation International (www.thyroid-fed.org)
Dr Petros Perros, Newcastle
Member of the TFI Medical Advisory Board
Click here to download the full document (which includes the appendix and reference).
September is Thyroid Cancer Awareness Month
Karen Gribbon is a thyroid cancer survivor who lives in Northern Ireland.
She is spreading the word about thyroid cancer and has just been featured in the Belfast Telegraph
Karen wants to remind people to "Check your Neck" and explains how to do this in her blog - www.raisingmightygirls.blogspot.co.uk
For more information about thyroid cancer go to
Tour De thyroid - Charity Bike Ride - Osijek to London 15th - 30th September 2014
A team of 6 people – the Butterfly Team – under the patronage of the Croatian Olympic Committee, are cycling from Osijek in Croatia to London to raise worldwide awareness and to educate more people about thyroid disorders, iodine deficiency and all other health issues relating to thyroid disease.
Damir Katusic and his wife, Liliya Kos-Katusic, are part of the team and have been working hard organising the bike ride.
They will be cycling more than 2100 km in 16 days, stopping in 17 cities throughout Europe and their goal is to get the support of many organisations, media, doctors and health ambassadors in each country and city in order to educate and spread the word regarding this serious public health issue.
They also want to raise money for a thyroid charity in each country they pass through and we are pleased to say that they chose Thyroid UK for the UK charity!
Please help us make a real difference to the way thyroid disease is diagnosed and treated by spreading the word about this bike ride and by donating to Thyroid UK.
To donate to Thyroid UK and help our work please go to www.thyroiduk.org.uk/tuk/donate.html
If you (or anyone you know) want to support the cause by joining them, you can join in anywhere on their route. If you do join them and would like to get sponsorships to raise funds for Thyroid UK, all you need to do is to set up a BTMyDonate page by going here - www.btplc.com/mydonate - and click the "Start Fundraising" box then follow the instructions.
For more information about the Butterfly Group, iodine insufficiency and details of their route click here to download their PDF presentation.
We will be keeping everyone informed of their progress as they travel through each country so keep an eye out for our reports!
The Hashimoto's Institute - 15th to 22nd September 2014
Is your thyroid causing you trouble? Do you struggle with unresolved symptoms like fatigue, weight gain, depression, and hair loss?
Dr. Izabella Wentz, Dr. Alan Christianson and Andrea Nakayama are here to tell you that you're not alone and I don't want you to miss the opportunity to learn more from them and their carefully curated team of experts in the free Hashimoto's Institute.
People with Hashimoto's deal with a collection of confusing, chronic and uncomfortable low-thyroid symptoms that aren't necessarily resolved with medication. That's because Hashimoto's affects all systems and the roots link back to your digestive function, your adrenal reserves, your genetic propensity and more.
You can learn to manage your symptoms and thrive with Hashimoto's but you need the pivotal information from the leaders in the field to take you there!
If you're ready to take back your health and thrive with Hashimoto's, it's time to enrol in the free Hashimoto's Institute and dive in to the wealth of information.
Dr. Alan Christianson (the physician), Dr. Izabella Wentz (the pharmacist) and Andrea Nakayama (the nutritionist) are world-class experts who focus much of their time on thyroid and autoimmune conditions, like Hashimoto's. They've joined forces and combined their clinical experience with the latest emerging research. They've gathered over 24 of the top experts in thyroid health to bring you the most cutting-edge Hashimoto's information.
You'll hear from experts like: Dr. Datis Kharazzian; Chris Kresser; Sarah Ballantyne; Dr. Tom O'Bryan; Donna Gates; Dr. Deanna Minich and 20+ others.
Hashimoto's is not merely a thyroid disorder. It's your health. Your life. Get inspired and empowered during the Hashimoto's Institute.
Once you join up you will also have the opportunity to download three amazing bonus gifts!
To attend this amazing free event please go to: http://hashimotosinstitute.com
Vaccine Research Trust
Traditional Family Fete
Sunday, 21 September 2014 : 11am - 6pm
in aid of Vaccine Research Trust!
At Lapworth Village Hall, Old Warwick Road, Lapworth, Warks.B94 6LD
Just to send out some final details for the fete this Sunday, 21st September.
The fete starts at 11am and we have loads of bands, BBQ, kids games and wild and wacky entertainment for the day.
If anyone fancies baking a cake we would love you forever! Also, please tell your amazing children to dress up in fancy dress as there are some great prizes for the best dressed child! We're very excited about seeing all the outfits.
Come enjoy, have fun and all for a brilliant cause, The Vaccine Research Trust www.vaccineresearchtrust.com set up by the one and only Gordon Skinner!
If you have SAT NAV - the postcode of the venue for the fete is B94 6LD.
From London - from the M40 (heading for Birmingham) take junction 15 then at longbridge roundabout take 2nd exit to A46 direction Stratford. At roundabout take 3rd exit to A46. Branch left and at roundabout take 1st exit to A4177 direction Solihull. At roundabout take 1st exit to A4177. Turn left onto Hockley road B4439 and once you go past the Boot Pub you will find the Village Hall on the right hand side.
We can't wait to see you all on Sunday!
Dear Vaccine Research Trust Supporter,
We would like to thank you for your ongoing support for the Trust.
We hope you enjoyed our recent Newsletter and we very much look forward to seeing you at the Charity fete on the Sunday 21st September (See below).
Many of you have asked how you could help us keep Dr Skinner's work alive, we have one specific request that we would like to ask of you. If anyone has between 3-5 hours of time that they could offer to help the fundraising administration for example finding fundraising bodies or individuals we could contact with a request to fund our work this would be much appreciated. All this voluntary work can be done remotely from your homes at a time that suits you.
We would be grateful for any help you can offer as we have a huge amount to do with a very small team and without your help we may not be able to continue Dr Skinner's valuable work.
Please contact us if you can offer your time or help in any way. This would be much appreciated from all of us here at the Trust.
Afshan Ahmad PhD,
Director of Research amd Development,
Vaccine Research Trust,
22, Alcester Road,
Traditional Family Fete
Sunday, 21 September 2014 : 11am - 6pm !
in aid of Vaccine Research Trust!
At Lapworth Village Hall, Old Warwick Road, Lapworth, Warks.B94 6LD
Thyroid UK Conference Ticket Giveaway
Sadly, Kerry Bird, a long time member of Thyroid UK, will not be able to attend our conference in October after all.
Kerry has VERY kindly offered her ticket up for raffle!
In order to enter, follow the link below, and either tweet the tweet or like our Facebook page - or do both!
You can do both once a day!
The draw will run for a week and the winner will be announced on our HealthUnlocked Support group, Facebook, Twitter and here on the website.
a Rafflecopter giveaway
Holtorf Medical Group Latest Webinar!
The Holtorf Medical Group are holding a webinar entitled "Thyroid Nuts and Bolts" by Nancy Evans ND. The webinar is being held on 21st August at 6pm PT/9pm ET (2am London time).
If you can't stay awake for this, it will be recorded and can be found here:
On this page you can also see previous webinars such as, "The Truth about Thyroid" and "All About Adrenals" – must see webinars!
Save Our Supplements!
Take Action Now!
Consumers for Health Choice need you to take action now to protect your access to safe, well-known and well-liked vitamin and mineral supplements.
Following the elections in May 2014, over 50% of the incoming European parliament is made up of new MEPs. These MEPs are susceptible to the lobbying of those groups representing big multinational firms who wish to see vitamin and mineral supplements banned.
Consumers for Health Choice have designed a toolkit to help you contact your MEP now and make sure they are fully briefed on your views before the European parliament resumes sitting in September. Download the toolkit, read the instructions and email your representative today to save our supplements – it's in your hands.
Consumers for Health Choice are also running a petition to back their campaign. For more information and to sign their petition go to:
Afshan Ahmad comments on Telegraph Arlticle
Afshan has written a letter to the Editor of the Sunday Telegraph in response to the article on 27/7/14, this can be seen on the 'Letters' page of the World Thyroid Register – go to www.worldthyroidregister.com
She has also posted it on the comments page below the article.
It seems that this article has caused quite a stir attracting over 200 comments so far – to see these, including Afshan's letter, here is the direct link to the article again, for ease of reference:- http://www.telegraph.co.uk/health/alternativemedicine/10985192/Could-a-renegade-doctor-save-your-life.html and if you click on 'comments' at the start of the article it will take you straight to all the comments below the article.
I have also written to the Sunday Telegraph and should you wish to do so then the Editor can be e-mailed on email@example.com
We all know that Dr Skinner was an exceptional doctor but he was also ethical and a man of integrity, which makes the remarks made against him by some of the 'mainstream' doctors cited in the article all the more despicable and of course we know them to be untrue.
Please add in your voices to this debate if you are so able.
Kind regards and warm wishes
Vaccine Research Trust - I Care Clicks
Please go to this link and click the purple care button everyone - then click the button that says post on facebook and ask all your friends to click it.
If we get 1000 clicks then we win £1000
Health App Survey
PatientView in collaboration with Health 2.0, are undertaking a short survey to find out what patients and carers really want from health apps.
This is an opportunity for patients and carers to tell app developers how health apps can be improved to better meet the needs of patients and carers.
The survey is open to anyone who has a long term condition and to carers of people living with long term conditions and is completely anonymous and confidential. The survey is short, with only 10 main questions, and should probably take no more than 10-15 minutes of your time As a survey participant, you can have a copy of the results emailed to you if you wish.
It is hoped that this survey will be used to engage entrepeneurs who fund the development of 'health apps' (computer programs that can be downloaded onto smartphones or tablets etc).
To take the survey go to www.surveymonkey.com/s/HEALTH-2 (closes on 24th October 2014)
Vaccine Research Trust July Newsletter
Fiona Skinner would love to thank the patients that came to the Celebration of the Life and Works of Dr Gordon Skinner on the 3rd May, and invite them to their Village Fete on the 21st September.
To read more please download the July edition of the Vaccine Research Trust newsletter
#UNMUTE Campaign - NHS Complaints
Recently Which? commissioned a survey into how complaints were handled by the NHS – the results were shocking; 40% of people who experienced problems within the NHS didn't complain and of those who did, more than half felt they were ignored, while 43% were dissatisfied by the outcome.
The recent public inquiry into the scandal at Stafford Hospital, saw complaints handling become a top priority for change and Which? are committed to not letting the government forget, so they are looking for 50,000 signatures on the #UNMUTE campaign which is asking the government to:
- Give people a role in triggering inspections by regulators through their complaints.
- Give people a unified public services ombudsman which can swiftly deal with their unresolved complaints.
- Give people a voice by allowing representative groups to make super-complaints in our public services, as they do in private markets.
The campaign is being supported by spoken-word artist George the Poet and music producer Jakwob, who have come up with a unique track in support and once the campaign reaches 50,000 signatures the full track will become #UNMUTED.
If you have ever felt unheard, please sign this petition: www.unmuteuk.com
Change.org Petition - NHS Complaint Handling
Tim Trent has set up a Change.org petition in respect of NHS Complaint Handling. Thyroid UK has seen that complaints have not been handled efficiently or correctly in some cases. The system needs to be changed and perhaps they will listen if enough signatures are collected.
To sign the petition please go to: https://you.38degrees.org.uk/petitions/make-nhs-complaints-count?bucket&source=facebook-share-button&time=1404723788
An important new paper published in Clinical Endocrinology Journal!
Thyroid UK advisors Rudolf Hoermann, John E.M. Midgley and Johannes W. Dietrich have just had a new research paper published in the Clinical Endocrinology Journal.
Dr John Midgley tells us:
"What it proves is that there is no such thing as a TSH range that is suitable for everyone, and that the range is different according to the effect of independent influences such as age, body mass, size of working thyroid volume and whether someone is on T4 or not.
The T4 therapy range is very much lower than the "normal" untreated and sits around the 1 or lower mark. The 3-4 upper level that works for the normal person is not satisfactory and can indicate undertreatment.
Also we're finding that people with no thyroid working at all cannot easily regain normal FT3 with T4 alone and that TSH suppression often has to happen, and in some people no amount of T4 will regain normal FT3 levels. Recent reviews by the gurus now admit that some people cannot handle T4 only and regain health. Just thought you'd like to know that the avalanche is beginning."
Homeostatic equilibria between free thyroid hormones and pituitary thyrotropin are modulated by various influences including age, body mass index and treatment
Rudolf Hoermann*, John E.M. Midgley†, Adrienne Giacobino*, Walter A. Eckl*, Hans G€unther Wahl‡,
Johannes W. Dietrich§ and Rolf Larisch
Article first published online: 7 JUL 2014
We examined the interrelationships of pituitary thyrotropin (TSH) with circulating thyroid hormones to determine whether they were expressed either invariably or conditionally and distinctively related to influences such as levothyroxine (L-T4) treatment.
Design and methods
This prospective study employing 1912 consecutive patients analyses the interacting equilibria of TSH and free triiodothyronine (FT3) and free thyroxine (FT4) in the circulation.
The complex interrelations between FT3, FT4 and TSH were modulated by age, body mass, thyroid volume, antibody status and L-T4 treatment. By group comparison and confirmation by more individual TSH-related regression, FT3 levels were significantly lower in L-T4-treated vs untreated nonhypothyroid autoimmune thyroiditis (median 4·6 vs 4·9 pm, P < 0·001), despite lower TSH (1·49 vs 2·93 mU/l, P < 0·001) and higher FT4 levels (16·8 vs 13·8 pm, P < 0·001) in the treated group. Compared with disease-free controls, the FT3-TSH relationship was significantly displaced in treated patients with carcinoma, with median TSH of 0·21 vs 1·63 (P < 0·001) at a comparable FT3 of 5·0 pm in the groups. Disparities were reflected by calculated deiodinase activity and remained significant even after accounting for confounding influences in a multivariable model.
TSH, FT4 and FT3 each have their individual, but also interlocking roles to play in defining the overall patterns of thyroidal expression, regulation and metabolic activity. Equilibria typical of the healthy state are not invariant, but profoundly altered, for example, by L-T4 treatment. Consequently, this suggests the revisitation of strategies for treatment optimization.
To view the above summary online, go to: onlinelibrary.wiley.com/doi/10.1111/cen.12527/abstract
The full paper is available for 'Patient Access', which means that:
Patients and/or caregivers may access this content for use in relation to their own personal healthcare or that of a family member only.
To download the full paper in PDF format, click here
Thyroid UK 2014 Conference - Exciting News!
Due to a large donation, we are able to extend the Early Bird booking price of £48 until the end of July!
From 1st August the price may still increase to £59, so don't leave it till the last minute to book!
For more information about the conference, click here or Click here to go to the booking form
Help Raise Funds for Thyroid UK by Commenting
Post a message of support for Thyroid UK on the Small Charity Week Facebook page and we could be in the running to win a cash prize of £200
The rules are:
1. The message is in the form of a comment on the Small Charity Week Facebook page (not a private message)
2. One message to be submitted per supporter
3. The comment must include the name Thyroid UK (this ensures the number of messages for each charity can be tracked accurately)
4. The comment should include a reason why you love Thyroid UK
5. Only messages submitted from the 16th June - 22nd June will be counted
Please support us – it will only take a few seconds! Thanks!
Are you an Hypo-allergenic Cook with a Recipe to Share?
The Vaccine Research Trust, a charity Dr Gordon Skinner established in 1982 is embarking on a major fundraising drive to support research into Dr Skinner's thyroid work. Many of his patients, friends and colleagues have very kindly donated generously and we are looking at new ways of attracting funds to continue this work.
One of our volunteers has very kindly offered to edit a collection of Free From recipes to be published as an ebook and all proceeds from the sale of this book will go to Vaccine Research Trust. I know that many people with thyroid problems develop sensitivity and allergic reactions to different foods, so we hope this ebook will be of great practical help too.
We would be very pleased if you would share your own home-made best recipe for inclusion in The Hypo-allergenic Cook Book, to be published with your name attached.
Recipes should strive to be Free From most of the following: Wheat, Gluten, Dairy, Eggs, Yeast, Soy, Sugar, High Fructose Corn Syrup, food colouring, artificial additives and preservatives. We know it is not always possible to be Free From all of these elements in every recipe but then, not everyone has exactly the same reaction.
It would also be most helpful if your recipe, tried and tested, was accompanied by a photograph of the finished dish, or perhaps the assembled ingredients as an illustration. We will try to include as many pictures as possible.
Recipes and photographs should be sent to:
Thanking you all and looking forward to the tasty delights!
Afshan Ahmad PhD
The Thyroid Summit
The Thyroid Summit is a range of 30 presentations about common medical problems tied to thyroid disease such as Wilson Temperature Syndrome; sex hormones and low dose naltrexone treatment.
Presenters include, Dr Mark Starr, Dr Mercola, Gena Lee Nolan, Jacob Teitelbaum, Dr Brownstein and Mary Shomon among many others.
If you're not aware of a thyroid problem, you could develop psychological, cardiovascular and neurological disorders. Medications for a variety of symptoms will never solve the problem, but optimizing your thyroid hormone with vitamins, minerals, dietary changes and the right medications can.
Some of the presentations are free for a short time buy you can purchase all the talks at a cost of $60. You will need to register but it's well worth doing so - http://thethyroidsummit.com
LDN (Low Dose Naltroxene) 2014 Survey
The LDN Research Trust is running a survey to find out the experiences of people taking LDN and which health conditions they have. To be eligible to take part in the survey you have to be taking LDN.
The LDN 2014 survey is anonymous. Your name, address, email address etc is not required. The results will be published online for everyone to see around the world.
If you would like to take part in the survey please go to: http://fluidsurveys.com/s/LDN2014/
I would like to thank everyone who came to Dr Skinner's Day on 3rd May to celebrated his life and work.
It was a truly memorable occasion where we heard about Gordon the family man from his children Fiona and David and about his work from clinical and research colleagues. Sheila Turner, Chair of TPA and Dr Barry Peatfield gave moving tributes to Gordon and his thyroid work. Fiona his daughter and now Chair of the Vaccine Research Trust informed us of the drive to raise funds to continue Gordon's research into thyroid disease and vaccines. There were friends, colleagues, patients, his Golfing group and French class and everyone had the opportunity to exchange stories about the Great Man.
Many of you kindly gave donations to the Vaccine Research Trust and I would like to thank everyone for their immense generosity.
Thank you again for attending and for your support; it is much appreciated.
Afshan Ahmad PhD,
International Clinical Trials Day - Watch This Video
It's International Clinical Trials Day. It's time all clinical trial results are reported.
Watch the new AllTrials campaign video. And change something.
Results from around half of clinical trials have never been published. Information on what was done and what was found in these trials could be lost forever to doctors and researchers, leading to bad treatment decisions, missed opportunities for good medicine, and trials being repeated. The contributions of the hundreds of thousands of patients who took part in those trials remain unused and unusable.
All trials past and present should be registered, and the full methods and the results reported. Sign up to make clinical trials count. 75,000 people and more than 450 organisations have joined. Public pressure is already changing regulations and getting past trials published in some countries. You and everyone you know can join it at alltrials.net and by sharing this video.
This has to be the last International Clinical Trials Day of the era when trial results are withheld.
Daily Mail Article - Post-traumatic Hypopituitarism
Joanna Lane has written an excellent article published in the Daily Mail on 17th May about the possibility that many patients with CFS/ME/Fibromyalgia are misdiagnosed.
The article discusses Post-Traumatic Hypopituitarism (PTHP) caused by a head injury. Christine Wrighton, who died in 2011 and Jill Mizen both found out that they had hypopituitarism years after suffering chronic fatigue.
There may be many more people with this condition than is currently realised and Thyroid UK is in the process of writing a patient information leaflet about this problem.
Eddie Barker is another patient who was found to have a growth hormone problem after years of ill health. You can read his story here -
Research needs to be done on this topic and then perhaps NICE will change their minds about including the condition in their guidelines.
To read the article go to:
Possible Problems with Erfa Thyroid
Thyroid UK is aware that some people are finding their Erfa Thyroid tablets do not seem to be controlling their symptoms as well. Erfa is investigating this due to the number of complaints they have received. Dr Henri Knafo from Erfa has posted the following on the Mary Shomon forum.
If you have been having problems with your Erfa tablets recently, perhaps it would be a good idea to answer his questions:
As you know we are currently investigating all the complaints that I received and I would like to ask for your help in order to complete the investigation.
1. Do you have a lot number and expiry date written on the bottle of Thyroid ? If so please give it to us.
2. Can you tell us what strength(s) you bought (30, 60 or 125mg) ?
3. Also please mention what pharmacy you bought the product from.
Once this information is received we can go forward with the investigation. Please feel free to email me if you have other questions
Dr Henri Knafo, MD, M.Sc, B.Sc
Email : Henri.firstname.lastname@example.org
Thyroid UK 2014 Conference
National Motorcycle Museum Conference Centre,
Solihull, West Midlands
18th October 2014
We are very pleased to announce the Thyroid UK 2014 Conference!
Our conference, which is being held at the National Motorcycle Museum Conference Centre in Solihull, will give you an opportunity to learn about thyroid disease and related conditions as well as meet up with people you can relate to and enjoy an informative day in this unique venue.
Dr Chris Steele MBE, resident doctor on the This Morning programme, is our keynote speaker.
If you book early, you can take advantage of our 'early bird discount'
For full information, and to book your tickets, click here
Dr Skinner's Celebration of Life
Saturday 3rd May 2014
Message from Dr Afshan Ahmad
We are ready to celebrate the Life and Work of Dr Gordon Skinner on Saturday 3rd May at the Lunar Suite, The Novotel, 70 Broad Street, Birmingham, B1 2HT. We are inviting people to come at 11am for an 11.30 am start and the details of the day are on the programme attached. We expect to complete the day by 4pm. If anyone is still interested in attending please come along.
Please click here to download the programme
B12 Deficiency Petition
Thyroid UK is aware of many people with B12 deficiency who say that their B12 "runs out" earlier than the allotted three months before they can have their next injection.
Tracy Witty, from www.b12deficiency.info has set up a petition to make injectable vitamin B12 (hydroxocobalamin) available over the counter.
If this topic affects you or someone you know, please sign the petition:
Our Government e-petition
2014 - 2015
A Call to Action!
On 23rd April 2014, Thyroid UK re-submitted their Government
e-petition asking for research into T3 and/or natural desiccated thyroid treatment to be funded.
You can view and sign the petition by going to http://epetitions.direct.gov.uk/petitions/64191
So, let's all...
Sign it, share it, Tweet it, FB it, add it to your email signature!
'Fund research into T3 and/or natural desiccated thyroid treatment for hypothyroidism'
To All Patients Of Dr Gordon Skinner
Dr Skinner's clinic closed on the 28th February 2014 but the clinic telephone is still functional on
0121 4498895. If any patient has an administrative query please call 0121 4498895 and if no one is available leave a message and we will return your call.
Once again we thank everyone who has donated generously to the Vaccine Research Trust in Dr Skinner's memory and for your support at this very sad time. We are humbled by your kind messages.
As a separate service, unrelated to Dr Skinner's clinic, Ms Helen Cox (Windsor) is offering support in respect of patients' thyroid health on 07951379649; there may be a minimum charge for this, as and when appropriate.
Afshan Ahmad PhD
Liothyronine Back in Stock
Thyroid UK has been informed that Amdipharm Mercury (AmCo) now have liothyronine back in stock.
The stock should be delivered to the wholesalers by the end of this week so your pharmacist should be able to obtain it the week after that.
Let's hope this doesn't happen too often!
Liothyronine out of Stock Again
Thyroid UK has contacted Amdipharm Co today regarding problems people are having obtaining their product, liothyronine.
Amdipharm told us that liothyronine is out of stock due to a manufacturing problem and that they hope they will be back in stock by the end of April 2014.
Fundraising with Alan the Ali Man
The lovely Alan Gardner has offered to help us with another fundraising drive!
He collects aluminium in his garden, sells it for scrap and then gives Thyroid UK the money!
The idea this time, is that people pay £1 to guess the weight in kilograms of the scrap he has collected.
If someone gets the weight EXACTLY right, then Alan has very kindly offered to give a prize to that person of the same amount!
If no one gets it spot on, Alan has offered to give a prize of 50% of the amount to the person who gets nearest, without going over and 50% to TUK.
Scrap raises £100.
You guess the EXACT weight - Alan will give you £100
You guess nearest, without going over - Alan will give you £50 and TUK £50
Thyroid UK gets the £1 entries and the value of the scrap.
If more than one person guesses right or nearest, they will share the prize money.
Please note that your guess should be in full kilograms, e.g. 162 kg not 162.2 kg
If anyone would like to get involved with Alan's unique fundraising idea - please do one of the following:
Drop a cheque (payable to Thyroid UK) for £1 (or more if you want multiple guesses) in the post with a note with your name, address, email/phone number and your guess in kilograms to us at
32 Darcy Road, St Osyth, Clacton on Sea, Essex, CO16 8QF
(You can also send £1 coins in the post but Thyroid UK cannot be held responsible if we don't receive them)
Drop me an email with the same details and ALI GUESS in the subject and I will send you a Paypal payment request.
The closing date for guesses is 24th Oct 2014. The winner(s) will be notified during the first week of November.
As usual, a HUGE THANK YOU to Alan for his generosity.
Please have a go and help to raise funds for Thyroid UK!
Official Closure of Louise Lorne Clinic, which was established by Dr Gordon Skinner
Thyroid UK has received this sad news and letter of thanks from Afshan Ahmad.
Gordon R B Skinner MD (Hons) DSc, FRCPath FRCOG
22 Alcester Road
Tel/Fax 0121 449 8895
28th February 2014
At 5pm today Friday 28th February 2014 we are officially closing Louise Lorne Clinic based at 22 Alcester Road, Moseley, Birmingham which was established by Dr Gordon Skinner in 1999 to offer help to thousands of patients who suffered from thyroid disease. Over the years we saw these patients returned to optimal health through Dr Skinner’s ministrations.
Every day at the clinic started with laughter and every day ended with great satisfaction for all who worked here. I feel fortunate to have worked with Dr Skinner as he was an exceptional human being.
Dr Skinner’s unique scientific mind combined with the depth of knowledge and experience of medicine enabled him to treat each patient on an individual basis and provide the care needed for that person. He was an independent thinker and a very courageous man, always standing up for what he believed. Dr Skinner always did his best for the patients and was true to his Hippocratic Oath.
I feel privileged and honoured to have been Dr Skinner’s student, colleague and friend. He has inspired generations of students and colleagues who have admired his courage, determination to seek the truth and uniqueness. The most common comment from patients has been that Dr Skinner gave them their life back - how fantastic to have done that for so many people.
On behalf of Helen Cox, Carol Wright and Helen Gordon I would like to thank all the patients, their relatives and friends for years of friendship and fun and their kindness at this difficult time. We have had wonderful years following patients’ progress some of whom went on to achieve great academic success, marital happiness and babies after treatment. We have been on difficult journeys with some and have been overjoyed by their successes and return to optimal health.
I would also like to thank TPA and Thyroid UK for their help and support.
We will continue Dr Skinner’s work in both thyroid and vaccine research and hope that you will all keep supporting us.
Afshan Ahmad PhD
The Late Dr John Lowe's Presentation
for Thyroid UK's 2011 Conference
Dr Lowe was asked to speak at the Thyroid UK 2011 conference. Because he could not attend, he kindly made a film of his presentation.
Dr John C Lowe sadly passed away on the 9th January 2012 at the age of 65. This film is the last film that he made and is a lasting tribute to his tireless work for thyroid patients. Unfortunately the sound quality is poor but it is certainly worth watching.
For more information and to see the video, click here
Celebration of the Life and Works of
Dr Gordon Robert Bruce Skinner
VACCINE RESEARCH TRUST
Charity Commission Registration Number 326276
22 Alcester Road, Moseley, Birmingham B13 8BE, UK.
TEL/FAX 0121 449 2429
TRUSTEES: Dr Rita Evans LDS RCS, Mr David Skinner MA (Hons), MSc (Hons)
CHAIRWOMAN: Ms Fiona E Skinner BA (Hons)
27th February 2014
You are invited to celebrate the Life and Works of Dr Gordon Robert Bruce Skinner to be held at the Lunar Suite, Novotel Birmingham, 70 Broad Street, Birmingham, B1 2HT on Saturday 3rd May 2014.
We would like to invite his patients, medical colleagues and friends to share in the day and enjoy a series of talks and anecdotes from Dr Skinner's life and further information on how we are committed to continuing the work of this great clinician and scientist with The Vaccine Research Trust.
The day will start at 11am with coffee/tea, drinks and refreshments served throughout the day.
As so many people have expressed an interest in attending please let us know as early as possible if you will be coming.
Our contact details are below and we really look forward to sharing this wonderful day with you.
Vaccine Research Trust,
22 Alcester Road,
Louise Warvill is European Admin of the Year!
We are extremely proud to inform you that Louise Warvill, Charity Secretary of Thyroid UK and lead Administrator of our online community, has been given an Award for Excellence from HealthUnlocked. Thyroid UK Support is one of the oldest and largest communities on HealthUnlocked.
Louise has been awarded 'European Admin of the Year' for showing time and time again why she is one of the top admins on their platform - by making sure nearly no one's question remains unanswered.
Louise works tirelessly to ensure that the platform runs smoothly, working many hours from home as well as at work. Thyroid UK is extremely grateful to her for her dedication. This award is thoroughly well deserved!
Read more: blog.healthunlocked.com/