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Other Support Organisations

 

Thyroid Disease

The British Thyroid Foundation
PO Box 97, Clifford, Wetherby, West Yorkshire. LS23 6XD.
Website: www.btf-thyroid.org
Tel: 01423 709707
Fax: 01423 709448

You have to join this organisation (there is an annual membership fee) if you want any information. They have a newsletter, produced four times a year, which gains an insight into some of the problems we have to contend with. Endocrinologists are among their Trustees and they therefore disagree with some of our points of view.

The TED (Thyroid Eye Disease) Charitable Trust
Head Office, P.O. Box 1928, Bristol, BS37 0AX
Tel: 0844 800 8133
E-mail: [email protected]
Website: www.tedct.co.uk

This is a registered charity and its aims are to provide information,
care and support to those affected by thyroid eye disease.

Broda O Barnes, M.D., Research Foundation inc.
PO Box 98 Trumbull, Connecticutt CT 06611
Tel: 001-203-261-2101
Fax: 001-203-261-3017
Website www.brodabarnes.org

A brilliant organisation where you can obtain information, audio and videotapes.

Fibromyalgia

Fibromyalgia Association UK
PO Box 206, Stourbridge, England DY9 8YL
Tel: 0870 220 1232 Fax: 0870 752 5118
Email: [email protected]
Website: http://www.fibromyalgia-associationuk.org

This group has a quarterly newsletter that you can subscribe to and support groups across the country. They do not believe that thyroid disease plays any part in fibromyalgia.

UK Fibromyalgia
Email: [email protected]
Website: http://www.ukfibromyalgia.com

This organisation have support groups and a monthly magazine.

Pituitary

The Pituitary Foundation
PO Box 1944, Bristol BS99 2UB
Tel: 0845 450 0375 E-mail: [email protected]
Website: http://www.pituitary.org.uk

The Pituitary Foundation is a national UK Charity which is working to provide information and support to those suffering from pituitary disorders, their relatives, friends and carers. They have no literature on thyroid disorders, but they can offer information to patients who are on pituitary replacement therapy, which includes thyroxine.

M.E.

Action for M.E.
Third Floor, Canningford House, 38 Victoria Street, Bristol BS1 6BY
Tel: 0845 123 2314
Email: [email protected]
Website: www.afme.org.uk

Bedfordshire ME Support Group
Carolyn Morris - Tel: 01234 403 664
Website: www.beds.me.uk
Email: [email protected]

AYME (Association for Young People with M.E.)
PO Box 605, Milton Keynes, Buckinghamshire, MK2 2XD
Email: [email protected]
Website: www.ayme.org.uk

Newsletter for young people. Advice and information.

Tymes Trust (The Young M.E. Sufferers Trust)
PO Box 4347, Stock, Ingatestone, Essex, CM4 9TE)
Website: www.tymestrust.org

Newsletter for young people. Advice and information.

25% M.E. Group
Mr S Lawrence, 4 Douglas Court, Beach Road, Troon, Ayrshire, KA10 6SQ
Tel/Fax: 01292-318611
Email: [email protected]
Website: www.25megroup.org

Founded & run by Simon Lawrence especially for the estimated 25% of severely affected. Hardworking, actively campaigning. Quarterly Newsletter. Leaflets, information

INVEST IN M.E.
PO Box 561, Eastleigh, Hampshire SO50 0GQ
Tel: 02380 251719 or 07759 349743 Fax: 02380 000040
Website: www.investinme.org

Independent group in Hampshire campaigning for biomedical research into M.E.
Seeking support and funding.

ME Free For All.org
36a North Street, Downend, Bristol BS16 5SW UK
Email: [email protected]
Website: www.mefreeforall.org
Dr John H Greensmith: [email protected]

Patients & Carers

Carers Direct
Telephone Helpline: 0808 802 0202
Facebook: http://www.facebook.com/NHSChoices#!/CarersDirect
Twitter: http://twitter.com/carersdirect
By post: Carers Direct, PO Box 4338, Manchester M61 0BY
Website: www.nhs.uk/carersdirect

Carers Direct is a national information, advice and support service for carers in England.
Available online and as a free, confidential helpline seven days a week,
it provides accurate, relevant information for carers and those who support them.

The Patients Association
PO Box 935, Harrow, Middlesex. HA1 3YJ.
Helpline: 0845 608 4455 Fax: 0181 423 9119
Email: [email protected]

"The Patients Association listens to the concerns of patients and focuses all its work on what matters to them. We are the first port of call for many who seek help with their health care problems. We aim to empower them to make informed choices and speak up for themselves with confidence and conviction".

Try writing to these people - if we all did this, perhaps we may get something done about our problem of normal blood tests with all the symptoms of hypothyroidism. They run a free and confidential telephone advice service, offering emotional support and practical guidance.

Patient Concern
This is an organisation committed to promoting choice and empowerment for all health service users. Their core principle is complete consumer independence.
Send a stamped addressed envelope for more information to Patient Concern PO Box 23732, London SW5 9F
website: http://www.patientconcern.org.uk

Contact them by e-mail at [email protected] They cannot answer e-mails individually but would like to hear from you about your experiences of the NHS; what improvements you would like to see and would like your support for any of their campaigns Please do not send attachments with your e-mails.

NHS Direct
This is the NHS Web site where you can get information on any medical problem.
Tel: 0845 4647
Scotland Tel: 0845 4242424
Website: http://www.nhsdirect.nhs.uk

Patient.co.uk
The aim of this website is to provide non-medical people in the UK with good quality information about health and disease. The authors do this by writing evidence based information leaflets on a wide range of medical and health topics. They also review health and illness related websites and link to many of these from the web directory included on this website. UK sites are the primary links in the web directory as they feel that residents in the UK prefer to obtain health information from UK sources. They also suggest some links to selected overseas sites.
Website:http://www.patient.co.uk/

EQUIP
an NHS website which signposts members of the public to useful health
and social care websites that have been quality-checked. It has a
directory of over 4200 support groups and services both national and
local to the West Midlands.
Website: www.equip.nhs.uk